Thalassemia

In the midnight he was fighting with death to survive for his life but what can he do? he was helpless and his condition was miserable. His mother and father were praying to Allah for their son but what is written in destiny is written. His name was Sohail Kareem ,just 8 years old and comes from poor family. His father Abdul Kareem worked in the factory of making toys and earned little money for the expenses of his home. Sometimes they used live hand to mouth.

The condition at that night of Sohail become so bad that he was breathing his last. His mother was sit sitting side by his bed and praying to Allah for some help. Tears were pouring out of her eyes continuously and were not stopping.His father was walking helplessly in the home could not see his son dying in front of his eyes. Unfortunately, Sohail could not survive and dead because no donar of blood was available. What was his sin that he was born with this killing disease?

It was just a story and not real one. But we have shared this to think about it because it actually happens in Pakistan as well as all over the world. Thalassemia is such a disease that has killed many lives in recent years. Most of the people did not have knowledge about this disease. Thalassemia is an inherited blood disorder in which the body makes an abnormal form of hemoglobin. Hemoglobin is the protein molecule in red blood cells that carries oxygen.

Thalassemia is inherited, meaning that at least one of your parents must be a carrier of the disease. It’s caused by either a genetic mutation or a deletion of certain key gene fragments.

Thalassemia minor is a less serious form of the disorder. There are two main forms of thalassemia that are more serious. In alpha thalassemia, at least one of the alpha globin genes has a mutation or abnormality. In beta thalassemia, the beta globin genes are affected.

Each of these forms of thalassemia has different subtypes. The exact form you have will affect the severity of your symptoms and your outlook.

The symptoms of thalassemia can vary. Some of the most common ones include:

Thalassemia occurs when there’s an abnormality or mutation in one of the genes involved in hemoglobin production. You inherit this genetic defect from your parents.

If only one of your parents is a carrier for thalassemia, you may develop a form of the disease known as thalassemia minor. If this occurs, you probably won’t have symptoms, but you’ll be a carrier of the disease. Some people with thalassemia minor do develop minor symptoms.

If both of your parents are carriers of thalassemia, you have a greater chance of inheriting a more serious form of the disease.

Some of the treatments include:

In the mega project of amal, we have decided for the cure of this disease. Number of thalassemia patients surpasses 2.5 million in Pakistan while the number of registered patients stands at 125,000 in the country. 8000 babies born with thalasema annually in Pakistan.

The Organizations in Pakistan that are working for the cure of this disease are

⚫ Thalassaemia society of Pakistan

⚫ Al- Khidmat Lab, Blood bank and Thalassemia Care Center

⚫ Sundas Foundation

⚫ Thalassemia Center by Prof Dr Yasmin Rashid

We have selected Al-Khidmat foundation because it is one of the leading, non-profit and independent organisation,fully dedicated to humanitarian services. One of its services is that it provides blood for thalassemia patients free of cost.They provide all the facilities like clean syringes ,HB tests etc.They have also taken the responsibility of 40 children.

To achieve our goals, we will conduct following activities in future:

Awareness: We will are people through social media like facebook , instagram ,twitter, watsapp and guide people to donate blood for the cure of this disease.

Fund Raising : We will collect money from our families, friend and social circles.

Campaigning: We will conduct campaigning in different institutes such as Ali Institute of Education, University of the Punjab, UVAS etc to collect blood from different people there in collaboration with Al-Khidmat team.

Collection at Al-Khidmat Foundation: We will bring people to Al-khidmat lab who are willing to come with us there.

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