When Stars Come Out to Play

Will they tuck us in tight, Or stay up high like thieves in the night? Shall I thank them for their work, Or feel weary about how they lurk? Kiss me on my nose Turn my cheeks the color of rose…

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Favorite questions from our ask me anything with AMAFeed.com

A few weeks ago we did an AMA about Unity Health Score and it had a great turnout. About 50 really great questions were asked and almost 200 people followed it. Here’s some of our favorite questions from that AMA. Here’s the link if you want to read every question and comment —

Q — What would happen to your data after you die? Could your family still receive payment if it was being used?

A — Yeah there’s actually a section on our website addressing this. We treat people’s data as n asset. They can put it in their will to have it go to a beneficiary or have it’s proceeds donated to a charity. So whoever it’s given to Will still receive payment every time the data is sold.

Q — Could you tell more about the first-hand experience in the healthcare industry that led you to create your company?

A — I’m the main caregiver for my grandmother with dementia. Taking her to doctors appointments and handling her follow ups and health plans has really shown me the disconnect in healthcare, where information sharing goes wrong, and how to solve it.

Q — How is technology redefining the healthcare industry in your opinion?

A — I don’t think redefining even does it justice, technology is literally evolving healthcare. We’re seeing an industry that once full of anomalies is now able to easily identify mysterious diseases with ease from the age of information. We’re seeing technology help medicine develop faster than ever before. We’re seeing new technologies provide surgery once never thought possible. So in my opinion, technology is not o my redefining healthcare. It’s evolving healthcare into a whole new world.

Q — Can you explain how your model allows more transparency for data gathering?

A — The current model obtains data through anonymized patients records. Patients have no idea their data is being sold. They have no incentives to produce consistent data. Our model allows the data customer to directly engage with the data seller, this allows research to be interactive. It gives patients incentives to get regular health screenings for consistent data. And overall is more transparent because underwriters and data brokers aren’t the main ones handling the data with our model.

Q — Can selling healthcare information be damaging to a person when misused by insurance companies?

A — It can and already is. However the issue is in that the system lacks transparency. Patients have no say in whose buying their data or how it affects them, we change that.

Q — Have you considered that some companies may misuse the data on Unity health score in a way that actually hurts patients?

A — Yes we have because this happens a lot in the medical data market but we firmly believe with our transparent means of data sharing the stakeholders being patients can themselves discern between whose buying their data and doing what with it.

Q — Can you give an example to the type of data that will be exchanged using your startup?

A — Mostly health metrics like cholesterol, blood pressure, bod fat percentage, ejection fraction. Medical history. Genetics. Will also be heavily analyzing demographic data. People’s journal entries like their daily mood. Virtually anything that can be related to health.

Q — You say that big companies make money off of people’s medical data. How is that possible when there are strict confidentiality laws when it comes to sharing patient’s data?

A — Because it’s entirely HIPAA compliant to anonymize data by taking away a degree of identifiable factors like your name to sell the data. There’s even a sub industry of organizations that cross reference purchased data back to people’s identity. legal loopholes.

Q — How do you foresee the future of the data-driven healthcare market? How would small and medium-sized companies maintain their competitive edge?

A — It’s going to explode. It’s already the world’s most valuable resource but it will continue to grow exponentially. Smaller and medium sized companies can maintain their competitive edge by recognizing the issues larger organizations are having a hard time stopping and solving with their high workload, like data organization.

Q — Can you tell about some of your healthcare and entrepreneurial mantras? Who do you admire?

A — People might not consider Einstein to be an entrepreneur, and to be fair he wasn’t. However I’ve applied a lot of his mannerisms in my journey of entrepreneurship. The concept of creativity being more important than knowledge and focusing on keeping an open mind to perform thought experiments has helped me brainstorm a lot of our organizations features versus just learning recorded knowledge. As far as healthcare goes, I highly value the current ideas of a patient centered industry. Patient data ownership. Universal healthcare. Overall a healthcare system that prioritizes patients over profits and sustainable business models.

Q — What makes current methods of data gathering inefficient?

A — It’s the lack of transparency that’s in my opinion the biggest culprit. Data is extracted through anonymizing patients medical records then forming a conglomeration of bulk data sets. Researchers are left sifting through bulk data, looking for consistencies and correlations, all the while these records are outdated and don’t present consistent health screenings. Our model allows more transparency, consistent screenings for more viable data, and a direct access from research to patients.

Q — Is it possible for researchers and patients to request and receive all of their medical data? If so, how?

A — Patients will be doing most the work putting their data on our systems through the Unity Health Score app. They can choose to have their data sent to them and taken off our systems at will. Their data is always at their fingertips on the application. As of now patients can’t even request data from their electronic health record vendors without having to pay for it often times. Their systems are only designed to work with facility systems. Researchers as of now generate most of their own data, larger organizations like WebMD or Bayer can purchase data through brokers. However it’s purchased in bulk, unorganized, and not easy to sift through for viable data. Researchers with us will be able to request specific data sets, and we will be able to tell them exactly how much of that we have, while letting the patients have the final say in whose buying

Q — What is the basic difference between owning medical data and controlling medical data?

A — By context owning your data would be having the option to take it off an organization’s systems, sell it, and choose who buys it. Controlling your data would be more along the lines of just choosing who can buy it. We will be providing patients with both.

Q — How are you planning to incorporate data analytics into the business? What difference could availability of medical data make to NHS, doctors, and patients?

A — Our health-score is the product of our data analysis for risk assessment. So we encompass medical data analytics with our health-score. It can create insurance premium negotiation space, better evaluation for recovery plans and follow up schedules, even help with prescreenings for surgery to reduce malpractice, diagnostic suggestions for doctors to utilize by cross referencing all documented anomalies with a.i. There is a lot of space in healthcare for analytics, but we aren’t planning to lead healthcare with A.I. We simply want it to be a tool at organizations, doctors, and patients disposal.

Q — What are some of the current trends and understanding of “data mining and analytics” in hospitals and healthcare?

A — Interoperability with EHR format. There’s too many different incompatible formats and healthcare data lacks a universal language to process it all. So what were focusing on is building more organized structured datasets for more efficient mining and analytics. We won’t be dealing with bulk data that lacks transparency like the current data market.

Q — How much is the average persons medical data worth? Are some individuals information more valuable?

A — It’s hard to say really. Individual records can sell for anywhere from pennies to thousands of dollars. More rare data is worth more, so rare diseases can fetch higher prices. However exceptionally healthy people have rare data as well. Florida State University is paying thousands of dollars for monthly healthy stool samples and you can imagine the data behind that is just as valuable. We will create a data market that has suggested prices but the true value determined not by us, but by the customers of research and the data owners of patients. There will be a lot of play room once we first hit the market and data value isn’t set in stone.

Q — How far has Data Analytics advanced over recent years and what impact has it had on the healthcare industry?

A — It’s allowed healthcare to add another tool in its arsenal of patient care. With data analytics it’s possible to find cures faster, identify variables and anomalies that baffle providers by cross referencing these situations on a large data base. It allows for the evaluation if new information to further progress the development of medical science.

Q — How does one’s medical data generate revenue and what are the benefits of big businesses buying medical data?

Q — What would happen to your data after you die? Could your family still receive payment if it was being used?

A — Yeah there’s actually a section on our website addressing this. We treat people’s data as n asset. They can put it in their will to have it go to a beneficiary or have it’s proceeds donated to a charity. So whoever it’s given to Will still receive payment every time the data is sold.

Q — Do you think everyone will want to take active control of their own health care? Why or why not?

A — I do. I think most people, especially those with health issues will actively seek out ways to be more involved with their health to recover. They just have to have the right tools at their disposal. Many doctors have scrutinized me for my startup and suggest patients aren’t capable of owning their health, we aim to prove them wrong.

Q — Could you tell more about the first-hand experience in the healthcare industry that led you to create your company?

A — I’m the main caregiver for my grandmother with dementia. Taking her to doctors appointments and handling her follow ups and health plans has really shown me the disconnect in healthcare, where information sharing goes wrong, and how to solve it.

Q — How is technology redefining the healthcare industry in your opinion?

A — I don’t think redefining even does it justice, technology is literally evolving healthcare. We’re seeing an industry that once full of anomalies is now able to easily identify mysterious diseases with ease from the age of information. We’re seeing technology help medicine develop faster than ever before. We’re seeing new technologies provide surgery once never thought possible. So in my opinion, technology is not o my redefining healthcare. It’s evolving healthcare into a whole new world.

Q — Can you explain how your model allows more transparency for data gathering?

A — The current model obtains data through anonymized patients records. Patients have no idea their data is being sold. They have no incentives to produce consistent data. Our model allows the data customer to directly engage with the data seller, this allows research to be interactive. It gives patients incentives to get regular health screenings for consistent data. And overall is more transparent because underwriters and data brokers aren’t the main ones handling the data with our model.

Q — Can selling healthcare information be damaging to a person when misused by insurance companies?

A — It can and already is. However the issue is in that the system lacks transparency. Patients have no say in whose buying their data or how it affects them, we change that.

Q — Have you considered that some companies may misuse the data on Unity health score in a way that actually hurts patients?

A — Yes we have because this happens a lot in the medical data market but we firmly believe with our transparent means of data sharing the stakeholders being patients can themselves discern between whose buying their data and doing what with it.

Q — Can you give an example to the type of data that will be exchanged using your startup?

A — Mostly health metrics like cholesterol, blood pressure, bod fat percentage, ejection fraction. Medical history. Genetics. Will also be heavily analyzing demographic data. People’s journal entries like their daily mood. Virtually anything that can be related to health.

Q — You say that big companies make money off of people’s medical data. How is that possible when there are strict confidentiality laws when it comes to sharing patient’s data?

A — Because it’s entirely HIPAA compliant to anonymize data by taking away a degree of identifiable factors like your name to sell the data. There’s even a sub industry of organizations that cross reference purchased data back to people’s identity. legal loopholes.

Q — How do you foresee the future of the data-driven healthcare market? How would small and medium-sized companies maintain their competitive edge?

A — It’s going to explode. It’s already the world’s most valuable resource but it will continue to grow exponentially. Smaller and medium sized companies can maintain their competitive edge by recognizing the issues larger organizations are having a hard time stopping and solving with their high workload, like data organization.

Q — Can you tell about some of your healthcare and entrepreneurial mantras? Who do you admire?

A — People might not consider Einstein to be an entrepreneur, and to be fair he wasn’t. However I’ve applied a lot of his mannerisms in my journey of entrepreneurship. The concept of creativity being more important than knowledge and focusing on keeping an open mind to perform thought experiments has helped me brainstorm a lot of our organizations features versus just learning recorded knowledge. As far as healthcare goes, I highly value the current ideas of a patient centered industry. Patient data ownership. Universal healthcare. Overall a healthcare system that prioritizes patients over profits and sustainable business models.

Q — What makes current methods of data gathering inefficient?

A — It’s the lack of transparency that’s in my opinion the biggest culprit. Data is extracted through anonymizing patients medical records then forming a conglomeration of bulk data sets. Researchers are left sifting through bulk data, looking for consistencies and correlations, all the while these records are outdated and don’t present consistent health screenings. Our model allows more transparency, consistent screenings for more viable data, and a direct access from research to patients.

Q — Is it possible for researchers and patients to request and receive all of their medical data? If so, how?

A — Patients will be doing most the work putting their data on our systems through the Unity Health Score app. They can choose to have their data sent to them and taken off our systems at will. Their data is always at their fingertips on the application. As of now patients can’t even request data from their electronic health record vendors without having to pay for it often times. Their systems are only designed to work with facility systems. Researchers as of now generate most of their own data, larger organizations like WebMD or Bayer can purchase data through brokers. However it’s purchased in bulk, unorganized, and not easy to sift through for viable data. Researchers with us will be able to request specific data sets, and we will be able to tell them exactly how much of that we have, while letting the patients have the final say in whose buying

Q — What is the basic difference between owning medical data and controlling medical data?

A — By context owning your data would be having the option to take it off an organization’s systems, sell it, and choose who buys it. Controlling your data would be more along the lines of just choosing who can buy it. We will be providing patients with both.

Q — How are you planning to incorporate data analytics into the business? What difference could availability of medical data make to NHS, doctors, and patients?

A — Our health-score is the product of our data analysis for risk assessment. So we encompass medical data analytics with our health-score. It can create insurance premium negotiation space, better evaluation for recovery plans and follow up schedules, even help with prescreenings for surgery to reduce malpractice, diagnostic suggestions for doctors to utilize by cross referencing all documented anomalies with a.i. There is a lot of space in healthcare for analytics, but we aren’t planning to lead healthcare with A.I. We simply want it to be a tool at organizations, doctors, and patients disposal.

Q — What are some of the current trends and understanding of “data mining and analytics” in hospitals and healthcare?

A — Interoperability with EHR format. There’s too many different incompatible formats and healthcare data lacks a universal language to process it all. So what were focusing on is building more organized structured datasets for more efficient mining and analytics. We won’t be dealing with bulk data that lacks transparency like the current data market.

Q — How much is the average persons medical data worth? Are some individuals information more valuable?

A — It’s hard to say really. Individual records can sell for anywhere from pennies to thousands of dollars. More rare data is worth more, so rare diseases can fetch higher prices. However exceptionally healthy people have rare data as well. Florida State University is paying thousands of dollars for monthly healthy stool samples and you can imagine the data behind that is just as valuable. We will create a data market that has suggested prices but the true value determined not by us, but by the customers of research and the data owners of patients. There will be a lot of play room once we first hit the market and data value isn’t set in stone.

Q — How far has Data Analytics advanced over recent years and what impact has it had on the healthcare industry?

A — It’s allowed healthcare to add another tool in its arsenal of patient care. With data analytics it’s possible to find cures faster, identify variables and anomalies that baffle providers by cross referencing these situations on a large data base. It allows for the evaluation if new information to further progress the development of medical science.

Q — How does one’s medical data generate revenue and what are the benefits of big businesses buying medical data?

A — Great questions, medical data generates revenue because data is the world’s most valuable resource. The development of new medicines relies heavily on medical data. Research, pharmaceutical, analytics, insurance company’s, you name it are buying medical data. It’s about a 30 billion dollar market right now. It benefits big business because hospitals and electronic health record vendors sell the data drawn from patients. My startup argues that patients should be in control of selling that data, not big business.

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